Comments for Breathinstephen http://breathinstephen.com Just a guy with really bad asthma trying to be normal Tue, 07 Feb 2012 15:21:29 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Do you know when it’s time to go in? by breathinstephen http://breathinstephen.com/do-you-know-when-its-time-to-go-in/comment-page-1/#comment-9210 breathinstephen Tue, 07 Feb 2012 15:21:29 +0000 http://breathinstephen.com/?p=19695#comment-9210 If your breathing is as bad as you claim, you really need to be evaluated by a competent pulmonologist. Asthma Kills, don\'t mess around with and certainly don\'t exercise when you\'re in the middle of a flare. If your parents wont listen, seek help somewhere else. Talk to a counselor at School. Good luck! If your breathing is as bad as you claim, you really need to be evaluated by a competent pulmonologist. Asthma Kills, don\’t mess around with and certainly don\’t exercise when you\’re in the middle of a flare. If your parents wont listen, seek help somewhere else. Talk to a counselor at School. Good luck!

]]> Comment on Do you know when it’s time to go in? by Krystie Gruppuso http://breathinstephen.com/do-you-know-when-its-time-to-go-in/comment-page-1/#comment-9209 Krystie Gruppuso Mon, 06 Feb 2012 22:04:48 +0000 http://breathinstephen.com/?p=19695#comment-9209 Hi Stephen, I had a severe asthma attack about 4 weeks ago, my parents didn't bring me to the hospital for it. It started when I was watching my last track meet I was depressed and mad when I was at the track meet my chest was a little tight and I had a cough I took my inhaler and it helped when I took it. Later on when I got home I was really sad that I had to quit track and I started to cry and my asthma kicked in I was breathing really heavy, my chest was extremely tight, wheezing, and it was very hard for me to answer the questions my stepmom was asking me about my asthma because I was very short of breath, I was also very dizzy when I walked. I don't think my parents realize how bad asthma can be. I'm going to a new doctor this month so hopefully he will put me on the right medication to control my asthma. I'm very limited to what I can do now I can't exercise much because it triggers an attack, I can't visit family right now because I can't be around cats for they trigger bad asthma attacks for me, parents still smoke so I try to limit my exposure to smoke. Please write back. I need your advice Hi Stephen,
I had a severe asthma attack about 4 weeks ago, my parents didn't bring me to the hospital for it. It started when I was watching my last track meet I was depressed and mad when I was at the track meet my chest was a little tight and I had a cough I took my inhaler and it helped when I took it. Later on when I got home I was really sad that I had to quit track and I started to cry and my asthma kicked in I was breathing really heavy, my chest was extremely tight, wheezing, and it was very hard for me to answer the questions my stepmom was asking me about my asthma because I was very short of breath, I was also very dizzy when I walked. I don't think my parents realize how bad asthma can be. I'm going to a new doctor this month so hopefully he will put me on the right medication to control my asthma. I'm very limited to what I can do now I can't exercise much because it triggers an attack, I can't visit family right now because I can't be around cats for they trigger bad asthma attacks for me, parents still smoke so I try to limit my exposure to smoke.
Please write back.
I need your advice

]]> Comment on The Recuperative phases of a severe asthma exacerbation by Tia http://breathinstephen.com/turning-the-corner/comment-page-1/#comment-9198 Tia Tue, 31 Jan 2012 11:36:25 +0000 http://breathinstephen.com/?p=11313#comment-9198 Brilliant article! I recently (1 week ago) had my first asthma attack and ended up in A&E, pumped up with steroids and antibiotics, and ended up in A&E again, 3 days later. Its has felt like an excruciatingly slow recovery and worrying me as to why I am not getting better. Finally on day 7 I am feeling so much better, still not 100's but i can breathe easily. Going out is still a bit of a struggle but indoors I'm fine. Hopefully the next couple of days I'll be able to feel like a normal person again. Thanks for the article it has definitely made me feel better, and can understand the process. I was under the impression that you get better a lot quicker and this was worrying me. Brilliant article! I recently (1 week ago) had my first asthma attack and ended up in A&E, pumped up with steroids and antibiotics, and ended up in A&E again, 3 days later. Its has felt like an excruciatingly slow recovery and worrying me as to why I am not getting better. Finally on day 7 I am feeling so much better, still not 100's but i can breathe easily. Going out is still a bit of a struggle but indoors I'm fine. Hopefully the next couple of days I'll be able to feel like a normal person again.

Thanks for the article it has definitely made me feel better, and can understand the process. I was under the impression that you get better a lot quicker and this was worrying me.

]]> Comment on Opiates, Dyspnea and Me by breathinstephen http://breathinstephen.com/opiates-dyspnea-and-me/comment-page-1/#comment-9179 breathinstephen Thu, 19 Jan 2012 01:14:25 +0000 http://breathinstephen.com/?p=9824#comment-9179 Ive never taken them for pain, Ive only used them for my breathing. To me , the side effects out weigh the benefits, so after being on them for 10 years, I weaned completely off. I still use nebulized dilaudid when I my breathing gets really bad. Ive never taken them for pain, Ive only used them for my breathing. To me , the side effects out weigh the benefits, so after being on them for 10 years, I weaned completely off. I still use nebulized dilaudid when I my breathing gets really bad.

]]> Comment on Opiates, Dyspnea and Me by cindy coffman http://breathinstephen.com/opiates-dyspnea-and-me/comment-page-1/#comment-9174 cindy coffman Tue, 17 Jan 2012 19:21:56 +0000 http://breathinstephen.com/?p=9824#comment-9174 you need a different doctor. I was on opiates for chonic pain went thru the struggle to get off them then after being diagnosed with COPD< Pulmonary arterial hypertension doctors insisted I go back on and so again my days are counting pills making sure I take only whats prescribed and it is alot easier to breathe and get thru the days.... you need a different doctor. I was on opiates for chonic pain went thru the struggle to get off them then after being diagnosed with COPD< Pulmonary arterial hypertension doctors insisted I go back on and so again my days are counting pills making sure I take only whats prescribed and it is alot easier to breathe and get thru the days….

]]> Comment on Recovering Sugar-holic by kathy http://breathinstephen.com/recovering-sugar-holic/comment-page-1/#comment-9159 kathy Sat, 07 Jan 2012 23:38:16 +0000 http://breathinstephen.com/?p=15077#comment-9159 HI If you want to kick the sugar. You need to eat plenty of healthy proteins. Good fats. Stay away from fruits, fruit juices are any sweet veggies. They convert into sugar. Take good multi supplements. I work with someone that specialzies in this stuff. I also go to school in holistic nutrition. HI If you want to kick the sugar. You need to eat plenty of healthy proteins. Good fats. Stay away from fruits, fruit juices are any sweet veggies. They convert into sugar. Take good multi supplements. I work with someone that specialzies in this stuff. I also go to school in holistic nutrition.

]]> Comment on Breathing Basics —O2 Saturation and Oximeters by breathinstephen http://breathinstephen.com/breathing-basics-o2-saturation-and-oximeters/comment-page-1/#comment-9139 breathinstephen Thu, 22 Dec 2011 14:31:58 +0000 http://breathinstephen.com/?p=17329#comment-9139 So sorry to hear that you were treated so poorly. This happens all the time and I hope you complain. It is rare that an O2 sat would be a 100% during a severe flare, but it is possible. O2 sat is usually the last thing to drop during an attack. It\'s also possible to have asthma and anxiety at the same time, One can cause the other. Do you have a resp consultant? You should have them write a letter on your behalf. You might consider joining my Facebook asthma group <a href="http://.https://www.facebook.com/groups/severeasthma/" rel="nofollow">.https://www.facebook.com/groups/severeasthma/</a> Hope you feel better soon. So sorry to hear that you were treated so poorly. This happens all the time and I hope you complain. It is rare that an O2 sat would be a 100% during a severe flare, but it is possible. O2 sat is usually the last thing to drop during an attack. It\’s also possible to have asthma and anxiety at the same time, One can cause the other. Do you have a resp consultant? You should have them write a letter on your behalf. You might consider joining my Facebook asthma group https://www.facebook.com/groups/severeasthma/” rel=”nofollow”>.https://www.facebook.com/groups/severeasthma/ Hope you feel better soon.

]]> Comment on Breathing Basics —O2 Saturation and Oximeters by cathy http://breathinstephen.com/breathing-basics-o2-saturation-and-oximeters/comment-page-1/#comment-9136 cathy Wed, 21 Dec 2011 20:30:50 +0000 http://breathinstephen.com/?p=17329#comment-9136 hi ive been too A and E this week due to asthma. i had a terrible experience. i couldnt breathe despite my inhalers and called an ambulance. the paramedics were judgemental saying they thought it was a panic attack because my oxygen sats levels were 100 percent. my peak flow was down. however they put me as a low priority and it was awful. in the end the doctor said she didnt know if it was anxiety, asthma or a chest infection and put me on antibiotics. im so angry i have suffered with asthma my whole life and because of my sats levels they assumed it was panic. i am going to complain hi ive been too A and E this week due to asthma. i had a terrible experience. i couldnt breathe despite my inhalers and called an ambulance. the paramedics were judgemental saying they thought it was a panic attack because my oxygen sats levels were 100 percent. my peak flow was down. however they put me as a low priority and it was awful. in the end the doctor said she didnt know if it was anxiety, asthma or a chest infection and put me on antibiotics. im so angry i have suffered with asthma my whole life and because of my sats levels they assumed it was panic. i am going to complain

]]> Comment on UK Adventure by breathinstephen http://breathinstephen.com/uk-adventure/comment-page-1/#comment-9125 breathinstephen Fri, 16 Dec 2011 14:31:52 +0000 http://breathinstephen.com/?p=20744#comment-9125 It was so nice to finally get to meet you, I'm just sorry that you weren't feeling good on that day. I hope I wasn't responsible for you ending up in the hospital later that week ( I have that effect on people sometimes..lol).. I really enjoyed my trip to England and I hope to return next year. I hope that you will feel better soon.xxxx It was so nice to finally get to meet you, I'm just sorry that you weren't feeling good on that day. I hope I wasn't responsible for you ending up in the hospital later that week ( I have that effect on people sometimes..lol)..
I really enjoyed my trip to England and I hope to return next year. I hope that you will feel better soon.xxxx

]]> Comment on UK Adventure by mymusicallungs http://breathinstephen.com/uk-adventure/comment-page-1/#comment-9120 mymusicallungs Wed, 14 Dec 2011 06:58:23 +0000 http://breathinstephen.com/?p=20744#comment-9120 Oh that's just darling. How wonderfully compiled and edited your photos are. I recognised the majority of them, even the back streets of Bath-I used to go shopping there!-and I loved that you put I used to live in Laycock. That place is exquisite but I had the worst asthma experiences ever living in my 200 year old damp cold cottage there! We are just so relieved you didn't have breathing troubles over here and made the absolute most of an incredible whirlwind tour of our country. Please visit again. It was such fun seeing you. Stay Well my friend xx Oh that's just darling. How wonderfully compiled and edited your photos are. I recognised the majority of them, even the back streets of Bath-I used to go shopping there!-and I loved that you put I used to live in Laycock. That place is exquisite but I had the worst asthma experiences ever living in my 200 year old damp cold cottage there!

We are just so relieved you didn't have breathing troubles over here and made the absolute most of an incredible whirlwind tour of our country.

Please visit again. It was such fun seeing you.

Stay Well my friend xx

]]> Comment on It’s official by Sam Holden http://breathinstephen.com/its-official/comment-page-1/#comment-9116 Sam Holden Mon, 12 Dec 2011 12:55:23 +0000 http://breathinstephen.com/?p=4988#comment-9116 Your cat's eyes are very nice and congratulations to that amazing achievement. Sam Holden Your cat's eyes are very nice and congratulations to that amazing achievement.

Sam Holden

]]> Comment on The Recuperative phases of a severe asthma exacerbation by GuestVal http://breathinstephen.com/turning-the-corner/comment-page-1/#comment-9053 GuestVal Tue, 22 Nov 2011 15:52:47 +0000 http://breathinstephen.com/?p=11313#comment-9053 I agree- scouring the net for somwthing, anything about "how long is this going to last this time? Why am I not bouncing back from the hospital very fast this time" " etc. and I found nothing until this blog. Well written and exactly what I ned- I am following this course to the letter , now 8 days out from emergency room and a full day in a hospital bed! WELL DONE! and so glad you're on FB I agree- scouring the net for somwthing, anything about "how long is this going to last this time? Why am I not bouncing back from the hospital very fast this time" " etc. and I found nothing until this blog. Well written and exactly what I ned- I am following this course to the letter , now 8 days out from emergency room and a full day in a hospital bed! WELL DONE! and so glad you're on FB

]]> Comment on Venous Access Port by kerri http://breathinstephen.com/venous-access-port/comment-page-1/#comment-8960 kerri Fri, 04 Nov 2011 02:21:28 +0000 http://breathinstephen.com/?p=20701#comment-8960 Hope your port serves you well . . . but that it doesn't have to do its job for a LONG time! :] <3 Hope your port serves you well . . . but that it doesn't have to do its job for a LONG time! :]
<3

]]> Comment on She called me at home by Rick Frea http://breathinstephen.com/she-called-me-at-home/comment-page-1/#comment-8944 Rick Frea Tue, 25 Oct 2011 17:38:29 +0000 http://breathinstephen.com/?p=20511#comment-8944 "She knows that I know my disease better than anyone and that her job as my pulmonologist is to be a facilitator and make sure I get the things I need." Love that quote. "She knows that I know my disease better than anyone and that her job as my pulmonologist is to be a facilitator and make sure I get the things I need." Love that quote.

]]> Comment on It’s been a while by kerri http://breathinstephen.com/its-been-a-while/comment-page-1/#comment-8913 kerri Sun, 09 Oct 2011 03:48:27 +0000 http://breathinstephen.com/?p=20636#comment-8913 Hey, it's Epic Steve! There is way too much here for me to comment on, but I think we've talked about the bulk of it anyway :]. I think autumn's my favourite time of the year, too. Been digging it this year -- of course, it's been unseasonably warm here. I think I'm happiest around 15-20*C, we hit 30+ a couple days this week. Crazy, it's freaking October. In CANADA. When will your house be ready for halloween? ;) Gettin' excited to hear about your trip! I hope it's full of awesome. Also, YAY, it's WINSTON!! And AWESOME DOUG! Good to hear from you in bloggy-form again! Keep on rockin', dude. :] Hey, it's Epic Steve! There is way too much here for me to comment on, but I think we've talked about the bulk of it anyway :].

I think autumn's my favourite time of the year, too. Been digging it this year — of course, it's been unseasonably warm here. I think I'm happiest around 15-20*C, we hit 30+ a couple days this week. Crazy, it's freaking October. In CANADA. When will your house be ready for halloween? ;)

Gettin' excited to hear about your trip! I hope it's full of awesome.

Also, YAY, it's WINSTON!! And AWESOME DOUG!

Good to hear from you in bloggy-form again! Keep on rockin', dude. :]

]]> Comment on Best Lung Blogs of 2010 by Kerri’s Holiday Punch http://breathinstephen.com/best-lung-blogs-of-2010/comment-page-1/#comment-8902 Kerri’s Holiday Punch Mon, 26 Sep 2011 22:51:28 +0000 http://breathinstephen.com/?p=18095#comment-8902 [...] Innocademy Blog CreativeMe68 kerriclogs – a resource for cloggers around the world Best Lung Blogs of 2010 | breathinstephen.comAç?klama : Once a year around the holiday season I like to put together a list of my favorite lung blogs. This year I thought it … Hope you are having a wicked holiday season!!!! hugs as … Oh yes, Kerri 's badge is so much better. Reply …http://breathinstephen.com/bes .. [...] [...] Innocademy Blog CreativeMe68 kerriclogs – a resource for cloggers around the world Best Lung Blogs of 2010 | breathinstephen.comAç?klama : Once a year around the holiday season I like to put together a list of my favorite lung blogs. This year I thought it … Hope you are having a wicked holiday season!!!! hugs as … Oh yes, Kerri 's badge is so much better. Reply …http://breathinstephen.com/bes .. [...]

]]> Comment on She called me at home by breathinstephen http://breathinstephen.com/she-called-me-at-home/comment-page-1/#comment-8890 breathinstephen Sun, 18 Sep 2011 20:10:33 +0000 http://breathinstephen.com/?p=20511#comment-8890 First of all, Thanks very much for your service to this country.Sorry to hear that your having a rough time with your health. A good friend of mine had BOOP, probably not as bad as yours, but he also has COPD and requires high flow O2. .In 2009 we did the Boston marathon together. We\'re both unable to run, so we walked it. Would you happen to know what your FEV1 is? I wish I could make some recommendations for you, but Im afraid my knowledge is limited to severe asthma. I do however know a lot of pulmonologists who specialize in all kinds of respiratory conditions. Please stay strong! First of all, Thanks very much for your service to this country.Sorry to hear that your having a rough time with your health. A good friend of mine had BOOP, probably not as bad as yours, but he also has COPD and requires high flow O2. .In 2009 we did the Boston marathon together. We\’re both unable to run, so we walked it. Would you happen to know what your FEV1 is? I wish I could make some recommendations for you, but Im afraid my knowledge is limited to severe asthma. I do however know a lot of pulmonologists who specialize in all kinds of respiratory conditions. Please stay strong!

]]> Comment on She called me at home by Daniel Meyer http://breathinstephen.com/she-called-me-at-home/comment-page-1/#comment-8889 Daniel Meyer Sun, 18 Sep 2011 18:15:09 +0000 http://breathinstephen.com/?p=20511#comment-8889 I would need a double lung transplant, and currently I don't qualify because I have too many other medical problems. I am struggling to find medical treatment to help all my secondary issues. I'm a disabled veteran as well. I would need a double lung transplant, and currently I don't qualify because I have too many other medical problems. I am struggling to find medical treatment to help all my secondary issues. I'm a disabled veteran as well.

]]> Comment on She called me at home by breathinstephen http://breathinstephen.com/she-called-me-at-home/comment-page-1/#comment-8888 breathinstephen Sun, 18 Sep 2011 15:02:33 +0000 http://breathinstephen.com/?p=20511#comment-8888 Hi Daniel, Sorry to hear about your health problems. Are you a candidate for lung transplant ? Hi Daniel, Sorry to hear about your health problems. Are you a candidate for lung transplant ?

]]> Comment on She called me at home by Daniel Meyer http://breathinstephen.com/she-called-me-at-home/comment-page-1/#comment-8887 Daniel Meyer Sun, 18 Sep 2011 07:10:40 +0000 http://breathinstephen.com/?p=20511#comment-8887 My Primary Care Physician is the exact same way. She calls me from time to time just to check up on me and see how I'm doing. She also has me make weekly appointments with her so she can check up on me and attempt to get me to doctors that can help me with all the secondary issues that have come from my very rare lung disease call bronchiolitis obliterans. The chemical damage that permanently damaged my lungs has now started spreading into other systems in my body and has been very difficult to deal with. I thank God every day for doctors like mine and yours who truly care about their patients. My Primary Care Physician is the exact same way. She calls me from time to time just to check up on me and see how I'm doing. She also has me make weekly appointments with her so she can check up on me and attempt to get me to doctors that can help me with all the secondary issues that have come from my very rare lung disease call bronchiolitis obliterans. The chemical damage that permanently damaged my lungs has now started spreading into other systems in my body and has been very difficult to deal with. I thank God every day for doctors like mine and yours who truly care about their patients.

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