Breathin Basics—ABG’s

“ABG’s” is another one of those medical acronyms that you hear all the time when you have asthma or lung disease. And if you’ve ever been unfortunate enough to be hospitalized for your asthma, no doubt you’ve had one of these tests done on you. ABG stands for “Arterial blood gases”. An ABG is a [...]

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Breathing Basics —O2 Saturation and Oximeters

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Today’s Breathing Basics review is all about Oxygen Saturation and Oximeters. If you have lung disease of any kind, no doubt you’ve come across the words “Oxygen saturation” or “O2 Sats” , “Pulse-Oximeter”? I use those terms on my blog all the time, but do you really know what they mean ? I suppose you [...]

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Asthma Breathing Zones

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This is the 2nd installment of my “ Breathing, the mini series“. This one is more for the non-asthmatics out there, but I think some of our lung challenged friends might learn a thing or two as well. If you hang around asthmatics or browse as many personal asthma blogs as much as I do, [...]

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Another piece of the asthma puzzle

Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there’s any good news in all this, it’s that there’s a new drug in the pipeline that could possibly help people like me who have this cellular abnormality. Dr Wenzel [...]

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Knocked down, but not defeated

(Arterial Line) Thanks everyone for your support and especially to Dr Wensel for staying in close contact during my 98th hospitalization. Thanks also to ALL the wonderful nurses who took care of me..You guys are awesome! Most of all, thank you to my dear Douglas who goes through hell every time I get sick. I’m [...]

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#97 , misinformation and a virus from Hell

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Battle scars: 4 failed arterial line attempts and 12 failed IV attempts. I have no veins left and my radial arteries are so scarred up from previous insertions, that it’s virtually impossible to get access unless they put a central line in. Very frustrating for the doctors and very painful for me. I’d been having [...]

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The SARP experience

Me and Sally

Welcome to Pittsburgh, Pennsylvania for the

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Off to the Burgh for the SARP

I’m a lab rat…. and proud of it ! Later today I’m off to Pittsburgh, Pennsylvania for the Sally Wenzel . She’s done so much to advance the knowledge of the severe forms of this disease. I admire her and feel like I already know her. My plane leaves at 11 pm tonight, and with [...]

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Number 96

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Thanks everyone for all your kind emails while I was in the slammer. The hospital volunteer who brought the messages to my bedside, said he’d never delivered so many messages to one person , and that I must be pretty popular:-) Sorry I couldn’t respond to each one individually, but I read all one of [...]

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SARP podcast

Interesting article from a 2008 SARP study, titled… “More than a Matter of Degree: Severe Asthma May Be a Different Form of the Disease”. Seems to answer a lot of questions Ive always wondered about. Dr Sorkness does a great job of explaining the basics of asthma as well as the research the SARP is [...]

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Im going to Pennsylvania to be studied.

SARP for short), is a collaborative research effort involving 4 different Universities, each adding their own research specialties to the mix. The basic goal of the SARP is to determine what make “severe” asthma different than the moderate of mild forms of the disease. The information they gain by studying people like me, is added [...]

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Bronchial Thermoplasty promising?

Earlier this week I participated in an asthma focus group , put on by the Bronchial Thermoplasty equipment. I think there were 11 of us in the group, plus 3 silent observers. The severity of disease among the participants ran the gamut from people who had such severe steroid dependent asthma that they could barely [...]

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Sleep Study

As I mentioned in a Paroxysmal nocturnal dyspnea” (“PND”) , also known as , believe it or not…Cardiac Asthma. Wouldn’t that be just swell if I had Cardiac asthma on top of Bronchial asthma? So anyways, tonight they’re doing a Transthoracic Echocardiogram to check my heart valves and to see if my pulmonary hypertension is [...]

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